Denise Neish - Choosing a Joyful Life with Cancer

3 Years!

So I guess it’s my “cancerversary” today. It was 3 years ago today that I was first diagnosed with breast cancer (3 weeks after that we discovered it was stage 4). It seems like a strange thing to celebrate, but really, I am just feeling contemplative today. Grateful to still be here, and incredibly grateful to be in remission. I celebrated by running 6 miles on my treadmill today.

Next month seems like more of a legitimate reason to celebrate because (assuming my PET scan in May goes well) I will celebrate two years of remission.

But a “cancerversary” might be a good excuse to get a chocolate cake or something? Plus there’s the fact that it’s Spring Break!!

Read at my Grandma Howard’s funeral- Her own words

I don’t mind saying that I had two amazingly wonderful grandmothers!  My Grandma Howard (Doris Jean Howard) was a spirited, yet always proper, country girl!  She lived in Missouri her whole life and was raised by her loving grandparents after suffering abuse as a young girl from her step-father.  She married my grandpa at the age of 17 because he was going off to war.  My grandparents were the happiest couple I have ever known.  They were poor, but made such a happy life for themselves.  They were fun and wonderful parents, and grandparents, and were loved by everyone in their little community.  She was a seamstress her whole life, working from home, while my grandpa had his own garage across the street from where they lived, where he fixed cars.

My grandparents loved being together.  They talked forever on their front porch, or over coffee in the morning, before my grandma scuttled him out the door for work, where she came and visited him frequently.  They fished, played cards, went on road trips, entered photography contests together, and she always kept a journal.  I came across this today and wanted to share it.  I have always loved this particular journal entry of hers.  At the age of 75 she wrote it, and we read it at her funeral four years later:

March 2002

I haven’t written for a long time.  I have now lived three quarters of a century.  That doesn’t make me so very old but I realize there are things I would have liked to do that are now closed to me.

I would have liked to have learned to swim and ride a bike and skate.  I would have liked to have finished high school and gone to college.  I wanted to be a writer or a singer or a teacher or even at one time a nurse.  I would have liked to go to New York or WashingtonD.C. and especially to Rome or Vienna or Jerusalem.  All of these things and more I would have liked to have done – but I wouldn’t trade the things I have done.

I have lain in the tall thick grass and watched the clouds make funny shapes as they floated across the sky.  I have ridden my pony wild and free through the fields and meadows and along the country lanes of my childhood.  I have gone to pick wild flowers in the woods with the greatest grandpa of all.

I have gone fishing, hunting and mushrooming with a wonderful man.  I’ve had a man that I have loved and who has loved me with all his heart for nearly 60 years.  I have held two beautiful babies in my arms and watched them grow.  I’ve gone to ball games, to concerts, to 4H shows and school programs and I’ve held 2nd and 3rd generations of babies.

I’ve helped make a loving and happy home for some and a safe haven for others.

If I should die – my plans as for now are to live forever – but you know how human plans are – as I was saying if I should die sometime in the near or far future I shall do so with few regrets.  Although I do wish I had learned to swim.  I’ll leave my little part of the world a little nicer and maybe my descendents will make it a little better.  Maybe little Luke (her grandson) will discover a cure for cancer or the common cold.

Some Thoughts on Overcoming Fear

My brother-in-law was diagnosed with cancer right before Christmas, and is now in the thick of the battle.  His prognosis is good, but it’s going to be a rough few months ahead.  Of course, this has caused me to think back to when I was first diagnosed with cancer, and I have always said that it was harder emotionally than physically.  I still believe that to be true.  Whether it’s cancer, or some other challenge, fear is often a part of the equation that can compound our problems.  But when we can overcome our fears, we are free.  Today I put down a few of my thoughts on overcoming fear:

Overcoming Fear

When I was a young girl I dreaded report card time or parent/teacher conferences, because I knew I would get a huge lecture and punishment from my parents who expected my best efforts.  The conclusion my father came to was that I was being lazy.  I knew that laziness wasn’t the real reason for my lackluster grades, but, honestly, I could not figure out why I wasn’t simply putting forth a little more effort to produce better grades.  I knew I could do better.  As I got older my grades gradually went up, and finally in college, when no one saw my grades but myself, I proved to be a good student.

After years of reflection, I sought deeply to understand myself better, and I contemplated the feelings I had as a young girl.  I wanted to determine why I was so unwilling to put my full effort into school.  Finally, I realized that it was fear.  I had always wanted to believe that I could get As in any subject if I tried hard enough, but, I told myself that I was only willing to put forth minimal effort, and that was why I was under-performing.  That theory brought me some measure of comfort.

So why didn’t I just try harder, when I lived in constant worry of displeasing my parents because of my poor grades?  Because something I feared even more than a scolding from my parents was possibly discovering that I wasn’t really as smart as I thought I was!  I was scared to risk trying my best.  Some call it fear of failure, but I think it was fear of truth.  Letting myself and my parents think that I was smart, but lazy, was better than the possibility of discovering I was not that smart.

I was only slightly more confident in my running abilities.  I was a good distance runner, and ran on the Track and Cross-country teams in high school.  My dad was so excited when I won, and it felt good for my parents to be proud of me, so, winning races became very important to me.  I needed that affirmation that I was good at something.  My self-confidence hinged greatly on how I placed in races.  I started running before school, as well as going to my practices after school, to get in better shape.  My hard work and some natural ability paid off and I began winning almost every race.  When I won, I felt on top of the world.  When I lost, or got a slow time, I was devastated.

Running was an emotional roller coaster for me, and I became so nervous that my sleep was distracted and I couldn’t eat for hours before races or I would be sick when I was done.  Race days were misery, but I didn’t want to quit because it was the one thing I was really good at.

There is a quote I like that says, “Courage is not the absence of fear, but rather the judgment that something else is more important than fear.”  That’s how I felt about track.  I prayed a lot about my running, and visualized myself in races doing my very best.  I continued to run well through high school and got a track scholarship for college.

By the time I was in college I was better at dealing with my anxiety over races.  And despite the fact that the competition was stiffer, and that my scholarship depended on my performance, I felt more calm and confident than when I was younger.  I knew that I was still valuable as a person no matter how I performed in my races.

Gaining a closer relationship with my Heavenly Father through personal scripture study and prayer during college helped me to gain that much needed self-esteem boost. Putting my running in proper perspective actually helped me to get the best out of myself because I wasn’t running with as much fear.

Fear comes in many forms and is something that everyone has felt and will feel throughout their lifetime.  Fear can cripple our development at best, and destroy our faith and self-esteem at its worst.  Fear is what comes before disobedience to commandments, loss of personal integrity, and loss of faith.

People who are fearful are not as capable of withstanding peer pressure or recognizing truth.  We learn from the scriptures that “God hath not given us the spirit of fear; but of power, and of love, and of a sound mind.”

There are many things we fear throughout our lives, but they usually come from one of a few categories.  “Fear of failure” is certainly the category that I would put my Track experiences in.  When we are afraid to try something for fear that the outcome could damage our self-esteem or our reputation with others, or some other undesirable consequence, then we are fearing failure.

“Fear of truth” means that we don’t want to know more about something because that knowledge may not be something we like, or want to know about, or follow.  It may make us feel guilty, or responsible to act in a way that is hard for us.  “Fear of truth” inhibits how deeply we will search into finding truth, because we don’t want to learn something that might rattle us from the safety of what we want to believe.

“Fear of man” is another fairly universal fear.  “Man” in this case is referring to mankind, or all people.  Fear of man comes into play when we are too concerned with what other people, or the world in general, may think of us.  “Fearing man” leads to making poor decisions in an effort to gain worldly acceptance instead of doing what we really believe is right.

When I was 21 I went on a mission for my church in Australia.  I immediately noticed that when we spoke to people about religion, they usually did not want to speak with us.  In fact, it seemed to me that we were just going around bugging everyone.  I was sensitive to this and didn’t want to bother people.  It took me a few months to realize that the important message we were sharing was so valuable that it was okay if we annoyed a few people in the process of trying to find those of God’s children who were ready for it.  With stronger faith, gained from the increased scripture study and prayer that was a normal part of my day as a missionary, I overcame my fear of approaching people to talk about the gospel.  I was experiencing some of that “perfect love” for people, spoken of in the scriptures, which “casteth out all fear”.

Even when your faith is strong, you can still experience overwhelming fear.  I have never been more afraid than when I was 37 years old, strong in my beliefs, secure in myself, my marriage, and a happy mother of four beautiful children.  One day a doctor told me something that nobody has ever been able to take back.  He told me that I had “incurable” metastatic breast cancer that had spread to my bones.

I went forward with aggressive treatment, chemotherapy which made me so sick I was hospitalized for about a month, radiation, and several surgeries and drugs.

I never doubted that God loved me and my family, but I was so sad at the thought that my husband and children would be left without me.  The worry I felt for my family was a crushing weight for me, and caused many sleepless nights.  I wasn’t sure if Heavenly Father knew how much my family really needed me.

During treatment I did my best to exercise faith.  It was all I had because there were so many reasons to be fearful.  I prayed for peace constantly, then went about doing everything I could to have the Spirit in my life.  I played uplifting music in our house, exercised when I had the strength, and practiced the piano more than ever before in my life.  I was amazed at the power of positive music to sooth my soul.  I needed to “feast” daily on the words of Christ to help calm the constant worry that came into my mind almost immediately when I wasn’t thinking of something else.  So I read my scriptures every night before going to sleep.

I prayed a lot.  When I was too sick or weak to get out of bed, or when I was alone at the hospital, I continued to pray between sleeping.  When I drove the hour it took to go for chemotherapy, I developed a habit of keeping the radio off and praying the whole way up and back in the quiet of my car.  I felt a very real and comforting warmth of Heavenly Father’s love for me in answer to my cries for peace and strength.

I have never fought harder to obtain peace than while I was battling cancer.  Finally scans showed no evidence of disease in my body, something that the doctors said would not happen.  Even when I was officially in a remission, and my body was getting stronger, my spiritual battle continued.  Fear of the unknown has been a mind-spinning challenge for me, but I have learned to completely trust God’s wisdom.  I know that no matter what happens, He will take care of me and my family.  I finally feel peace in my heart almost all of the time.  And when I don’t, I know the things I can do to find it.

I’m grateful that because my fear, sorrow, and pain were more than I had ever experienced before, I was also able to see the obvious hand of God in my life more than ever before.  I have felt strongly since then that I need to always acknowledge that He is there, and that He did, in fact, help me every time I really needed it.  I have tried to have a close relationship with my Heavenly Father, and asked Him to give me courage.  He has always made me equal to the challenges I faced.  I was given strength and courage beyond my own.

Faith in Christ can help us overcome any fear.  Christ said, “In the world ye shall have tribulation, but be of good cheer; I have overcome the world.”

Amazing article on Running and preventing breast cancer recurrence

I came across this article today posted by a breast cancer survivor on another website.  Naturally it caught my eye!  This study shows that regular running can help prevent breast cancer recurrence by about 25%!  I think that is pretty amazing!! Here are a couple of quotes from the article:

“Previous studies have shown that breast cancer survivors who meet the current exercise recommendations (2.5 hours of moderate intensity physical activity per week) are at 25% lower risk for dying from breast cancer. New research from the U.S. Department of Energy’s Lawrence Berkeley National Laboratory (Berkeley Lab) and reported in the International Journal of Cancer suggests that exceeding the recommendations may provide greater protection, and that running may be better than walking.”

“If I were a breast cancer survivor, I would certainly consider running or some other vigorous exercise over walking, and I wouldn’t just be doing the minimum, with the consequences and potential benefit being so great,”

Click on the link below to read the full article and read the statistics.  I have always personally felt that it is more important now for me to run than ever before, and that running is a key to maintaining good health going forward.  This study totally validates that notion.  There are also psychological benefits to running when you are going through a difficult challenge of any kind.  So get those running shoes out and lace up!!

http://www.sciencedaily.com/releases/2014/01/140129115205.htm

Look for the Future!

My church makes these little videos (this one is 3 minutes long), and when I saw this one I sorta got chills.  I LOVED it and wanted to share this today.  Basic message:  Don’t look back, look forward!  It’s a message of hope and courage for anyone, no matter what you believe.

https://www.youtube.com/watch?v=lrZij9MSTRI

I should watch this at the beginning of each day!!

Ooops!!

Sorry to those of you who sent me messages over the past week or two using the “contact me” icon on my site.  I did not think I had received any messages at all yet, then I just checked my junk mail and found some.  I’m so glad that my site has reached a few people, and I feel so bad that I haven’t responded back to some very kind messages, and even a few who have shared their story with me.  I am grateful for your messages, and I will get back to you all as soon as possible (this weekend for sure!)

I think my email account just didn’t recognize these first messages that were sent through my site, and so now that I have marked them as ‘not junk’, hopefully that won’t happen in the future.  I will be checking my junk mail just in case!! Sorry again, and thanks for the messages!!

For Today . . .

This post is for those of you fighting a battle in your life (doesn’t have to be just cancer).  I am in a great place now, NED for almost two years.  But we all need each other in this world at certain times, and now I feel a little more capable of being a cheerleader to anyone who is in the same place I used to be!

So, . . . my thought today is this:  Whatever your day looks like today, whether you are lying in bed, hospitalized with chemo sores in your mouth and a feeding tube (been there!), dragging slightly from chemo, or feeling well, but a bit scared, let’s make this the BEST day we can today.  If you have friends and family all around you, GREAT!!  If you are having relationship problems, or are feeling depressed, YOU can do it too!!  You may not know me, but I really do care about how you are doing today, and I do know how you feel (in general, of course).

What can we do to make it the BEST day today?  Start on your knees in prayer and talk to your Heavenly Father about how you are feeling and how you would like to make the best of this day.  (Even if you are not a believer in God, what does it hurt to try?)  Then, get up off your knees and do it!!  Look for ways to make those around you happy.  Thinking of others is really hard when you have a lot to focus on just to make it through the day, but it is amazing how we can still do little things that can make the better day for someone else in our path if we are determined to do it.  And that can’t help but rub off on us.  Okay, here’s the cheer:  Rah, rah rah!!!  You can do it!!!  :) 

Please feel free to share some great ideas on how to make the best of your day today, and let’s all be thinking of each other and praying for each other to succeed in this too.  (And hey!  You could be the lucky first person to post a comment on my new site!)  Tomorrow I want reports on how it went!!  ;)

Welcome to my new website!

Friends and Family,

I have created a personal website called deniseneish.com. I’ve been working on it for a long time for a few reasons:

First, I made exactly what I was looking for when I was diagnosed with stage 4 breast cancer. I wanted to find survivors out there. Really, what I was looking for was hope that I might be one of the 1-3% who are cured. I always knew that if I made it to this point, I would get myself out there on the internet for other women to find.

Another reason I made this website is because I have been through an incredible experience in the last 2 1/2 years. We all seem to take turns dealing with difficult trials in our lives. I have been inspired by seeing, or reading about, others who have successfully navigated some of life’s craziest curve balls. We learn from each other, even if our paths our very different. My hope is to inspire or lift anyone going through any type of personal crisis.

A third reason I made this site is because I continue to work (slowly) on writing a book about my battle with stage 4 breast cancer.  This will be my author website when I try to get it published.  My writing has gone through several phases.  At first I think I wrote completely for myself. To be honest, I was a bit traumatized by this whole experience, and writing helped me deal with it, even if I felt inclined to write a lot of the painful details. But the longer I have been healthy, and in remission, I am able to write with a lot more joy. I’m excited to write more, because there is a happy ending!

If you have followed my caringbridge journal in the past, I will be posting all journal updates on my new website. I transferred my journal entries over to deniseneish.com.

For friends who have never read my caringbridge journal in the past, you are welcome to read my story from the beginning of my diagnosis. I will continue to update it regularly when I get new scans, and occasionally when I share some reflections and insights related to my cancer experience.

Please, feel free to share my website with anyone you know who may benefit from it.  I especially want to reach those who are battling cancer. Thank you!

Sincerely,

Denise (deniseneish.com)

Optimistic Stage 4 Breast Cancer Study

Optimistic Stage 4 Breast Cancer Study

Written Apr 10, 2012 11:10pm

http://jco.ascopubs.org/content/20/3/620.full
This is the most hopeful study I have found about metastatic (stage 4) breast cancer. Please share this with anyone who has breast cancer. There is more hope for cure for stage 4 breast cancer than doctors usually communicate to the patients. I have looked for positive studies about metastatic breast cancer for the past year, and this one is my favorite!!

PET scan results in!

PET scan results in!

Written Nov 5, 2013 9:07pm

Yesterday was PET scan day.  I will admit, I dread it each time!!  I really felt like this would be fine, but if I’m ever wrong, obviously that is a huge life-changer for us, and I know all too well what battling cancer is.I had Kevin, the guy who has done almost all of my scans.  I always feel like I’m seeing an old friend when I see him!  He’s this big Missouri guy with a genuinely kind personality.  He always treats me well and lets me look at the scan at the end.  He has always been optimistic for me, even the first time when we looked at the scan together and it was obvious there was something going on.  I remember he told me that he couldn’t read the scan for me (although, of course he could, he just isn’t supposed to.)  “But”, he said, “if it is cancer, you just stay positive.  It’s amazing how much a positive attitude can help.  You stay positive no matter what the doctors say!”  Then he told me about his dad beating some other type of cancer that was really advanced.  I will always remember his optimism while I was so afraid and in such despair.  What a great guy!Anyway, Kevin was there again, and he remarked how incredible it was that I was doing so well having been diagnosed with stage four breast cancer.  He said, “I can’t wait to look at this scan!”  And I said, “Me too, ’cause it’s going to be awesome!!”The process took much longer than usual because there were some problems with the big machine, and I was also told that due to Obamacare we had to do the PET  and CT scans separately rather than together for some billing reason.  Weird. That made it take longer too. I had to hold completely still for about an hour after I had been sitting in a dark room drinking my huge nasty drink for about two hours!!  My arms were above my head, and my right arm fell asleep and then was just painful for most of the scan.  It was so dead when I was done that I couldn’t feel it at all when I pinched it!  Anyway, I was glad to be done with the scan.

Today I received a phone call from some nurse telling me that my scan was “stable”.  I said, “Stable . .  as in no cancer?”  He said, “Stable means no change from last time.”  I had to clarify with him that my last few scans had been completely clear, and wanted to make sure that’s what he meant.  Finally he just told me that it showed no signs of cancer.  Wish he would have just said that the first time!  ;)

I am just feeling super grateful and relieved!  It really is quite remarkable to be a year and a half in remission after having cancer in many lymph nodes and in my spine and pelvis.  It’s hard to explain how strange it is to allow myself to believe that I may be completely well. I am sincerely grateful to be alive and grateful for my health, and feeling more and more optimistic all the time about having a long and healthy future. Thank you again for all of you who have prayed for me!!!